Impact
See aggregate outcomes, update trends, and public reporting without private records.
Open impactResources
Practical materials for patients, clinicians, researchers, and partners.
Find public guides and explainers about MDA, Mito Map, consent, referrals, privacy, research collaboration, and visit prep. If you are getting ready for a clinic visit, open the patient visit summary template first so you can write down what changed, what you want to ask, and what you want to remember.
For patients and families
Start with the pages that explain what happens next.
How it works shows when to join, when Mito Map helps, and when to come back.
Community lists stories, events, and ways to stay connected between visits.
FAQ answers common questions about privacy, consent, and referrals in plain language.
You can use these pages without sharing detailed records. If you later choose to join Mito Map, private health details stay there, not in public forms.
Use the public pages to jot down what changed and the questions you want to bring to your next visit or call. Open the patient visit summary template if you want a simple one-page note to fill in before clinic.
If you want a printable next step for clinic, download the handout or open the quick-start one-pager and bring it to your care team.
Contact is for general support, privacy, or operational questions when you need a person.
Visit prep
Bring a short summary so the visit starts with what changed.
If symptoms, medicines, tests, or goals have changed, a short note makes it easier to keep the appointment focused. You do not need a full history in one sitting. Start with the most recent changes, then add the questions you want answered.
Write down what changed since the last visit, especially anything new, worse, or still unclear.
Bring the top questions you want answered so the conversation can stay focused.
Use the patient visit summary template if you want a simple page to fill in before clinic.
If you already use Mito Map, bring the current summary with you instead of rebuilding the story from memory.
Evidence and results
Reviewed results live on the Impact and Publications pages.
This page explains the program and the review process. If you want the public evidence trail, start with Impact for aggregate outcomes and Publications for reviewed milestones, presentations, and plain-language summaries.
Publications
Browse reviewed milestones, publications, presentations, and plain-language summaries when they are ready.
Open publicationsCare conversation prep
Use the public summary to write down what changed and the questions you want to bring to your next visit.
Open impactGuidelines and consensus
Start with the original source, then use MDA for the plain-language path.
If a page cites a guideline or consensus statement, use the MDA summary for context and then open the original source before sharing it in clinic. MDA links to the source so readers can review the exact language; it does not claim endorsement unless the source itself says so.
Use the original guideline or consensus paper for the clinical details.
Use the clinician quick-start one-pager when you need the MDA and Mito Map boundary.
Use the referral handout when a patient wants a printable next step.
Keep charts, labs, genetics, and urgent questions out of public forms.
For biomarker and endpoint work
Use cohort readiness to judge whether a signal is worth reviewing.
MDA can show whether a cohort is becoming more useful for biomarker and endpoint planning by sharing aggregate participation, update freshness, and reviewed evidence. Exploratory signals stay exploratory until they are reviewed, and detailed health data stays in Mito Map.
Good fit: aggregate summaries, readiness snapshots, and source-locked claims for reviewed outputs.
Not here: raw charts, lab files, genetic reports, or patient-level matching.
Next step: Use Research for collaboration requests and Publications for reviewed evidence.
For clinicians
Use one short follow-up message instead of rewriting the same explanation.
These materials keep referral language plain, lightweight, and privacy-safe. Start with the quick-start if you need the boundary, then use the after-visit message when a patient wants a simple next step.
Clinician quick-start one-pager
A short download that explains the MDA and Mito Map boundary, what to share, and what not to send.
Download quick-startAfter-visit message template
A copy-and-paste note clinicians can send after a visit when a patient wants a low-pressure research participation next step.
Download templateReferral handout
A printable public handout for patients and caregivers who want the plain-language referral path.
Download handoutWhat patients should expect
Patients can review the public pages first, then keep detailed health information and consent choices in Mito Map if they choose to continue.
Open registryPatient visit summary template
A patient-controlled note that helps organize what changed, what to ask, and what should stay private.
Download templateFor researchers and institutions
Review the collaboration rules before requesting nonpublic data.
The institution playbook explains the value exchange, required institutional approvals and signatures, MDA's data and IP defaults, licensing boundaries, negotiation options, and the one-page intake decision.
Open Researcher Institution Playbook
A printable guide for principal investigators, sponsored-research offices, IRBs, privacy and security teams, and technology-transfer offices.
Download PDFIndependent Open Researcher Playbook
A practical guide for unaffiliated contributors, citizen scientists, developers, analysts, patients, caregivers, and other people applying in a personal capacity.
Download PDFResearcher program
Review requestable data categories, collaboration support, publication expectations, and the application path.
Explore programPatient participation overview
Plain-language overview of how patients and caregivers move from public learning into Mito Map participation.
Open resourceClinician referral guide
A practical guide for clinicians who want to point patients toward trusted research participation.
Open resourcePatient visit summary template
A short take-home prompt for patients and caregivers to write down what changed, what to ask, and what to bring back before a visit.
Open resourceResearch collaboration guide
Explains how researchers can propose a collaboration, what review looks for, and how consent protects participants.
Open resourceBiomarker and endpoint readiness
Shows how aggregate, consent-aware summaries and cohort quality help collaborators judge whether a signal is ready for biomarker or endpoint work.
Open resourcePrivacy principles
Plain-language privacy and data-use principles for the public MDA website.
Open resource