Mito Discovery Alliance clinician quick-start

Use this when a patient or caregiver asks about mitochondrial disease research participation.

What MDA is
- MDA is the Alliance's public website.
- Mito Map is the private tool for detailed health information, consent choices, and patient-level workflows.

What to share
- Share the clinician page, the handout, or the FAQ.
- If a staff-reviewed referral is appropriate, send a short non-sensitive note and give the patient the printed handout so they can start with the free join flow.

How the handoff works
- Start with the public clinician page or handout during the visit.
- Use the referral form only for a short, non-sensitive introduction when follow-up makes sense.
- MDA reviews the note, keeps the first response lightweight, and keeps any next step patient-controlled.
- Tell families to start at /join if they want the free public starting point after the visit.
- If the patient continues, Mito Map handles detailed health information, consent choices, and patient-level workflows.

What not to send
- Do not upload raw charts, genetic reports, lab files, or urgent questions through the public form.
- Keep private health details in Mito Map or the approved clinical workflow.

What the patient can expect
- A plain-language explanation of MDA and the MDA/Mito Map boundary.
- A patient-controlled next step when follow-up is appropriate, starting with the free join flow.
- A clearer first conversation, because the patient can read the public page before deciding what to share next.
- A separate place for private summaries and detailed updates if they choose to use Mito Map.
- A simple visit-summary template they can fill in before clinic if they want to keep questions and changes organized.

Where to go next
- Join flow: /join
- Clinician page: /clinicians
- FAQ: /faq
- Evidence library: /publications

MDA is educational and does not replace clinical judgment, diagnosis, treatment, or urgent care.